I love Kesha.
Like a lot.
I'm sorry TJizzle, I know this was a secret that I shared just with you, but I had to confess it to the world.
Anyone who can manage to work the word mangina into a song deserves my love and respect.
I had a rough afternoon yesterday. Tingly face and I was stupid. These days are frustrating because I can't perform basic tasks. Things like writing on the board for the kids become an insurmountable task because I can't remember how to spell basic words.
Frustrating.
At least I had apple pie and a huge chunk of cheese for breakfast!
I was diagnosed with a weird head thing called Idiopathic Intracranial Hypertension (or Pseudotumor Cerebri). This is my blog about living with it.
Showing posts with label annoyed. Show all posts
Showing posts with label annoyed. Show all posts
Tuesday, May 15, 2012
Sunday, April 1, 2012
Tuesday, March 13, 2012
Bummer Summer
A public service announcement...
TODAY IS NOT FRIDAY.
Even though it is beautiful and you felt like doing nothing at work today and you spent a half an hour down by the pond watching some weirdo hopping up a hill it is not Friday. It is Tuesday. Tuesday. It is also a full work week. So get used to it.
Today. Oh today. It was gorgeous but I had a headache. On and off all day. Lots of floaters in the morning. Stupid. It seemed to go away in the afternoon but then it came back when I rode my bike. Exercise induced headaches. Have I told you about these?
Certain exercises, like schlepping your bike up a hill, tend to increase intracranial pressure. YES! The one benefit to this condition. An excuse not to exercise.
So when we were hanging out the other night Wills wanted me to address something in my blog. She said that she wasn't clear on how this whole thing started. She knew the history with the hospitalization but she was curious to know when the symptoms first started.
The answer is I don't know.
There are indicators that it may have been something I have had since high school. Or it may have been something that just started. We don't know. Idiopathic means without origin which means we don't know exactly when it started. We don't know why it started and we don't know how it started.
Have I mentioned you can donate? They also have a store. There is a really pretty bracelet.
TODAY IS NOT FRIDAY.
Even though it is beautiful and you felt like doing nothing at work today and you spent a half an hour down by the pond watching some weirdo hopping up a hill it is not Friday. It is Tuesday. Tuesday. It is also a full work week. So get used to it.
Today. Oh today. It was gorgeous but I had a headache. On and off all day. Lots of floaters in the morning. Stupid. It seemed to go away in the afternoon but then it came back when I rode my bike. Exercise induced headaches. Have I told you about these?
Certain exercises, like schlepping your bike up a hill, tend to increase intracranial pressure. YES! The one benefit to this condition. An excuse not to exercise.
So when we were hanging out the other night Wills wanted me to address something in my blog. She said that she wasn't clear on how this whole thing started. She knew the history with the hospitalization but she was curious to know when the symptoms first started.
The answer is I don't know.
There are indicators that it may have been something I have had since high school. Or it may have been something that just started. We don't know. Idiopathic means without origin which means we don't know exactly when it started. We don't know why it started and we don't know how it started.
Have I mentioned you can donate? They also have a store. There is a really pretty bracelet.
Monday, March 12, 2012
Today Sucked
Stupid today.
Everyone was crabby and their hair was messed up.
I got yelled at by the lunch ladies. EXCUSE ME if the Stinker has a processing delay and needs a little more time telling you who her teacher is. You don't have to YELL at me. And we come through everyday. You should kind of know by now and you could just be punching it in while I am forcing her to go through the motions.
It was rainy and I was crabby. I had a headache all day and I was tired. I yelled at an old man who was trying to cross the road. Not like, to him, but in my car. I also yelled at a lady who didn't merge as quickly as I wanted her to.
So I guess I was crabby too. Let's all hope that tomorrow is better.
Everyone was crabby and their hair was messed up.
I got yelled at by the lunch ladies. EXCUSE ME if the Stinker has a processing delay and needs a little more time telling you who her teacher is. You don't have to YELL at me. And we come through everyday. You should kind of know by now and you could just be punching it in while I am forcing her to go through the motions.
It was rainy and I was crabby. I had a headache all day and I was tired. I yelled at an old man who was trying to cross the road. Not like, to him, but in my car. I also yelled at a lady who didn't merge as quickly as I wanted her to.
So I guess I was crabby too. Let's all hope that tomorrow is better.
Saturday, March 3, 2012
Negative, and not me this time...
I guess it is amazing that I made it this long. Three months without someone looking at me and doubting the fact that anything was wrong with me. Three months without someone making an insensitive comment. I guess I should be grateful.
That stopped last night. Last night when my headache was at about a 6 and had decided to stick around for two days straight. Last night when I had worked a full day and gone out anyway to help Wills raise money for boobies. Last night when I was putting on my game face because this stupid thing is not going to stop me.
That's when I was told I was using it as an excuse.
That's when I was asked if I planned on collecting disability now.
That's when I was told "I see you out all the time" (a blatant falsehood) so there must not be a problem.
And I did not handle it well.
Thinking about it now in the calm light of day I realize it was an opportunity wasted. It was an opportunity to educate that I did not take. Maybe it was not the time or the place to explain that chronic pain is often invisible and that just because you cannot see it does not mean that there is nothing wrong. But you know what, it is always the time and the place. Because he needed to be educated.
So Mr. Boardsman, here is your education.
I wake up in the morning with a splitting headache. I have to drag myself out of bed because both my condition and my "cure" cause extreme fatigue. I go into work where I educate special needs children all day long. I typically have a headache most of the day. I also experience a variety of neck and shoulder pains as well as tingling in my extremities that makes doing anything difficult. On a good day I feel ok. On a bad day I feel like complete shit. I cannot let the children see. I strive to appear like I am feeling excellent each day.
After work I am exhausted. I go home and typically do not get off the couch for the rest of the evening. Not because I do not want to but because I simply cannot. The pain and the pressure and the fatigue are too much.
Why don't I take some Motrin and shut up? Maybe because pain killers don't work. The only way to decrease my pain is to decrease my pressure. The medicine that decreases the pressure has severe side effects that cause similar symptoms to my condition, but at least I will not go blind. It was not made for this condition so it is not the most effective. Nothing was made for this condition because it is rare. It affects 1 in every 100,000.
I get up every day and I do this with a smile because I am stronger than you can imagine. So next time you want to accuse someone with a chronic condition of "using it as an excuse" maybe educate yourself first.
I don't know that I will be asking 10 of my friends to vote for you, sir.
That stopped last night. Last night when my headache was at about a 6 and had decided to stick around for two days straight. Last night when I had worked a full day and gone out anyway to help Wills raise money for boobies. Last night when I was putting on my game face because this stupid thing is not going to stop me.
That's when I was told I was using it as an excuse.
That's when I was asked if I planned on collecting disability now.
That's when I was told "I see you out all the time" (a blatant falsehood) so there must not be a problem.
And I did not handle it well.
Thinking about it now in the calm light of day I realize it was an opportunity wasted. It was an opportunity to educate that I did not take. Maybe it was not the time or the place to explain that chronic pain is often invisible and that just because you cannot see it does not mean that there is nothing wrong. But you know what, it is always the time and the place. Because he needed to be educated.
So Mr. Boardsman, here is your education.
I wake up in the morning with a splitting headache. I have to drag myself out of bed because both my condition and my "cure" cause extreme fatigue. I go into work where I educate special needs children all day long. I typically have a headache most of the day. I also experience a variety of neck and shoulder pains as well as tingling in my extremities that makes doing anything difficult. On a good day I feel ok. On a bad day I feel like complete shit. I cannot let the children see. I strive to appear like I am feeling excellent each day.
After work I am exhausted. I go home and typically do not get off the couch for the rest of the evening. Not because I do not want to but because I simply cannot. The pain and the pressure and the fatigue are too much.
Why don't I take some Motrin and shut up? Maybe because pain killers don't work. The only way to decrease my pain is to decrease my pressure. The medicine that decreases the pressure has severe side effects that cause similar symptoms to my condition, but at least I will not go blind. It was not made for this condition so it is not the most effective. Nothing was made for this condition because it is rare. It affects 1 in every 100,000.
I get up every day and I do this with a smile because I am stronger than you can imagine. So next time you want to accuse someone with a chronic condition of "using it as an excuse" maybe educate yourself first.
I don't know that I will be asking 10 of my friends to vote for you, sir.
Tuesday, February 21, 2012
Negative
I figured I'd warn you in the title.
This will not be a positive entry.
I went out to dinner with my mom and went back to her house to dye her hair and watch Project Runway. I felt fine. Suddenly at about 7:45 I was hit with a headache. So I lay down for a second because that's what you want to do when you have a headache. You want to lay down. Except when you have IIH. Then laying down makes it worse which sucks because all I want to do when I have a headache is lay down. And that woman made me dye her hair anyway.
I have been woken up by headaches my whole life. In the middle of the night I would wake up because my head hurts that badly. Somewhere in my brain I would think, if I could just fall asleep then this headache will go away. When I would lay down the headache would get worse and typically I would end up abusing advil and crying.
Early sign of IIH? Who knows. Who cares? I have the stupid thing and nothing is going to change that.
This will not be a positive entry.
I went out to dinner with my mom and went back to her house to dye her hair and watch Project Runway. I felt fine. Suddenly at about 7:45 I was hit with a headache. So I lay down for a second because that's what you want to do when you have a headache. You want to lay down. Except when you have IIH. Then laying down makes it worse which sucks because all I want to do when I have a headache is lay down. And that woman made me dye her hair anyway.
I have been woken up by headaches my whole life. In the middle of the night I would wake up because my head hurts that badly. Somewhere in my brain I would think, if I could just fall asleep then this headache will go away. When I would lay down the headache would get worse and typically I would end up abusing advil and crying.
Early sign of IIH? Who knows. Who cares? I have the stupid thing and nothing is going to change that.
Friday, February 17, 2012
Post-Spinal Tap Post
And my pressure waaaas............
I DON'T KNOW.
Why don't I know?
BECAUSE I WAS LIED TO.
Hubs took care of my scheduling for me and he was told not once but TWICE that radiology did taps on a walk in basis. Now that might sound weird to some people, but it didn't to me because Dr. Cowboy did my tap while smoking a cigarette and knocking back a beer. Clearly they are no big deal. So I have the day off and I waltz into the hospital and tell them I am there for my tap and they're like, erm, we do these through OUTPATIENT SURGERY.
Otherwise known as not radiology and not on a walk in basis. So now I have to miss work and get the tap done on the 29th (I did smile because I would be getting my tap done on Rare Disease Day). Post tap they will make me lay on my back for hours even though Dr. Cowboy said that was completely unnecessary because they do the taps to lower my pressure which is counteracted by the whole laying on your back thing.
I am slightly annoyed.
I am also tempted to show up in the emergency room and lie, telling them I have double vision and just get the damn thing done there. This is all WAY more complicated than it needs to be. I told them to call Dr. Cowboy because I was sure HE would do the tap on the registration lady's desk before we had finished signing the papers. That is just how he is.
Mrs. Rocketship, get your staple remover sharpened because on Tuesday we are doing an at home spinal tap.
So Hubs and I drive home in rather low spirits and walk into the house to find the dogs have eaten half the bag of dog food and left only poop, pee, and vomit behind. They have been kind enough to spread it across two rooms so I had to go on a random bodily fluids hunt. It was kind of like an Easter egg hunt but far stinkier and with less candy. I am not in the best of moods at the moment. I think I need a nap.
I DON'T KNOW.
Why don't I know?
BECAUSE I WAS LIED TO.
Hubs took care of my scheduling for me and he was told not once but TWICE that radiology did taps on a walk in basis. Now that might sound weird to some people, but it didn't to me because Dr. Cowboy did my tap while smoking a cigarette and knocking back a beer. Clearly they are no big deal. So I have the day off and I waltz into the hospital and tell them I am there for my tap and they're like, erm, we do these through OUTPATIENT SURGERY.
Otherwise known as not radiology and not on a walk in basis. So now I have to miss work and get the tap done on the 29th (I did smile because I would be getting my tap done on Rare Disease Day). Post tap they will make me lay on my back for hours even though Dr. Cowboy said that was completely unnecessary because they do the taps to lower my pressure which is counteracted by the whole laying on your back thing.
I am slightly annoyed.
I am also tempted to show up in the emergency room and lie, telling them I have double vision and just get the damn thing done there. This is all WAY more complicated than it needs to be. I told them to call Dr. Cowboy because I was sure HE would do the tap on the registration lady's desk before we had finished signing the papers. That is just how he is.
Mrs. Rocketship, get your staple remover sharpened because on Tuesday we are doing an at home spinal tap.
So Hubs and I drive home in rather low spirits and walk into the house to find the dogs have eaten half the bag of dog food and left only poop, pee, and vomit behind. They have been kind enough to spread it across two rooms so I had to go on a random bodily fluids hunt. It was kind of like an Easter egg hunt but far stinkier and with less candy. I am not in the best of moods at the moment. I think I need a nap.
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