Soooo... We have a day! Rare Disease Day. Now, I know it is not a day for people with IH but it IS a day for people like me with rare diseases that don't get the attention needed.
IHRF got my registry registration packet. They will now contact my doctors to get all of my info and they will add me to the registry and I will help get the IHRF one step closer to more grant money and interested researchers for the IHRF. Did I mention you could donate?
Second day back at work and it is already easier. It helps that the Stinker was absolutely adorable today. As she was walking into PE she looked at the two PE teachers and said, "It's my boyfriends!" Come on. That is adorable.
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